What is the Australian Parkinson’s Pain Study (APPS)?

The purpose of the APPS is to investigate the characteristics and treatment of pain in Parkinson’s. This information will enable researchers to develop:

  • A comprehensive profile of pain experienced by people with Parkinson’s
  • A deeper understanding of the needs of people with Parkinson’s in the management of pain symptoms
  • A set of patient centred recommendations that may be used to advance the provision of pain care services

Who can participate?

Persons that:

  • Have been diagnosed with Parkinson’s
  • Have experienced pain symptoms in the past month
  • Are an Australian citizen or permanent resident currently living in Australia
  • Are aged 18 years or older

What does participation involve?

Participation involves completing an online survey. The survey includes questions about the nature of participants’ pain symptoms and the steps they have taken in managing their pain.

Ethics and confidentiality

This study has been approved by the University of South Australia’s Human Research Ethics Committee (Ethics Protocol 205671).

All information collected for the study remains confidential in accordance with The Australian National Health and Medical Research Council (NHMRC) Human Research guidelines and the Australian Privacy Act.

Who is organising and funding the study?

This study is part of a larger PhD research project being undertaken at the Rosemary Bryant AO Research Centre, University of South Australia and is funded through an Australian Government Research Training Program Scholarship and The Hospital Research Foundation Group – Parkinson’s.

Who are the researchers?

The following researchers at the University of South Australia are conducting this study:

Who to contact for further information?

If you want any further information about this study or if you have any problems which may be related to your involvement in the study, please contact:

Name:             Anthony Mezzini

Position:          Principal Investigator

Telephone:      +61 427 820 256

Email:              anthony.mezzini@mymail.unisa.edu.au

We would like to acknowledge the support of